Well, this post is very late but the past few days have been very busy. Last Thursday, I went back to the doctor to make sure that nothing dramatic was going on since we pulled my picc line out. I saw a different doctor so I got another opionion on my particular situation. The graph for the PFTs looked so much better that I thought about hanging it on my fridge.
After another meeting and giving some blood to research, I was off to Audiology. It was clear that I was not raising my hand at all the right beeps when the lady running it went to get someone to check that the machine was working right. I apparently have good hearing during conversation but not at the higher decibels. She reassured me that this was considered age related loss except for the fact that I am all of 35. So, I will go back again to meet with the doctor.
Next, it was home to pack and deliver the dog to my mom who was kind enough to drive him the rest of the way to my grandparents. In order to be gone for four days, I had to find a dog sitter, a butterfly sitter (to take over for me), and a kind soul to water our garden. I also had to pack all my equipment and nebs in a giant suitcase. By the time my husband got off work, we were almost ready to go.
Our first stop was The Great Wolf Lodge in Wisconin Dells. It was a great time and so fun to get to actually do something relaxing with my family. My daughter told me to just hold her hand in the wave pool and then I wouldn't be scared. She is brave beyond her four years.
Our next adventure was the race track in Joliet, Illinois. My husband's family met us there so we got to see our darling nephews and catch up with everyone. One of his college friends came with his new son and wife too! One of the highlights in Illinois was being one exit away from Steak & Shake. My nephew didn't think that I could eat it three days in a row but I did and that must be a few extra calories.
We went home via Iowa to catch up with my friends from college and meet some new babies! They aren't really babies anymore so my visit was a little overdue. My friend agreed to host all of us so we could just order pizza. It was a little different than our days in the dorm with six kids between the four of us.
I am very thankful to all the folks who agreed to help me out over the weekend. It was a really good time. Now, I am off to find a dog sitter for my next big adventure and get to the pool before I lose my ambition.
Blessings,
Cindy
Showing posts with label Babysit. Show all posts
Showing posts with label Babysit. Show all posts
Wednesday, July 6, 2011
Friday, June 24, 2011
A new day
So, today was a day of extremes. I went back to the U where we were going to either pull my picc line or restart a drug on a 24 hour pump. I got a little lucky at the PFT lab. The staff is changing and my lab is closing where I will be promoted to the "adult" lab. This means my 35 years on the Pediatric floor will come eventually to a close. One of the staff members who has been working at the U as long as I have been going to the U was there to help me today. The first try was not at all inspiring. The second and third were still not as inspiring as I hoped. We waited and filled out the survey. After two more attempts, I agreed that we had tried although the results were still a little inconclusive. One magic number was about the same and the other was slightly down which may or may not signify anything.
Next, I was off to visit Audiology to see if my hearing is really a concern or if the ear muffs are just a figment of my imagination. I also had to wait for the office to page my doctor and for him to call back. So, my hearing test was postponed but I never got the message. While I was trying to schedule another one, my phone rang and it was one of the darling women in the office telling me that we could pull my picc line. (I would really get tired of me calling all the time if I had her job.) Of course, I had to agree that we would put it back in if I got sick and likely it would be a port next time.
The highlight of the day was coming home without my picc line and watching my daughter start jumping up and down. She exclaimed, "Now, you can go to the pool with me and Daddy!" My list of fun things to do (besides a lot of treatments) includes:
dancing
yoga
swimming
personal trainer
hiking at the State Park
sprinkler park
traveling
camping
riding my bike
making freezer meals
tending the garden and the roses
finishing the office project (this isn't really fun)
opening the "spa" (treatment room)
Well, this is just the beginning of the list so feel free to send suggestions. I will still be doing three vests a day but I can sleep like a normal person. In a few days, my arm will be healed and I can even wash my hair without a vet glove for the first time in roughly five months.
Blessings,
Cindy
Next, I was off to visit Audiology to see if my hearing is really a concern or if the ear muffs are just a figment of my imagination. I also had to wait for the office to page my doctor and for him to call back. So, my hearing test was postponed but I never got the message. While I was trying to schedule another one, my phone rang and it was one of the darling women in the office telling me that we could pull my picc line. (I would really get tired of me calling all the time if I had her job.) Of course, I had to agree that we would put it back in if I got sick and likely it would be a port next time.
The highlight of the day was coming home without my picc line and watching my daughter start jumping up and down. She exclaimed, "Now, you can go to the pool with me and Daddy!" My list of fun things to do (besides a lot of treatments) includes:
dancing
yoga
swimming
personal trainer
hiking at the State Park
sprinkler park
traveling
camping
riding my bike
making freezer meals
tending the garden and the roses
finishing the office project (this isn't really fun)
opening the "spa" (treatment room)
Well, this is just the beginning of the list so feel free to send suggestions. I will still be doing three vests a day but I can sleep like a normal person. In a few days, my arm will be healed and I can even wash my hair without a vet glove for the first time in roughly five months.
Blessings,
Cindy
Wednesday, June 15, 2011
Date Night
On our girls adventure, my daughter and I found a fun new menu planning tool. We picked up a menu board for our fridge. It is working pretty well so far but I find that we tend to change our menu a lot or just rearrange it. We had a very fun weekend and my husband won both his races so he was having fun too.
We also had a surprise date night this week. My last date with my husband was the work Christmas party. My daugther decided that she wanted to go visit her grandma and her cousins who were staying with my aunt. She also made sure to request shrimp for dinner. On our date, we got to have some dinner and take a romantic stroll around Menard's for my latest project.
Yesterday, I spent most of the day by myself which rarely happens. After the weekly nurse visits, I went on a bike ride and got a little exercise. I also managed to squeeze in a trip to the grocery, a visit to the library, a stop at the bank, a pedicure, and a haircut.
Today, I am very thankful for time to do the laundry that I have been trying very hard to ignore and some cancelled plans. I am hopeful that all of this rain is helping our garden and our new CSA grow! I am also glad to have my assistant back home again. She helped make chicken broccoli "cupcakes" last night and I have never seen anyone so excited over using the cupcake pan. Today, we are going to make some pasta salad for the Salad Luncheon at church tomorrow.
Blessings,
Cindy
We also had a surprise date night this week. My last date with my husband was the work Christmas party. My daugther decided that she wanted to go visit her grandma and her cousins who were staying with my aunt. She also made sure to request shrimp for dinner. On our date, we got to have some dinner and take a romantic stroll around Menard's for my latest project.
Yesterday, I spent most of the day by myself which rarely happens. After the weekly nurse visits, I went on a bike ride and got a little exercise. I also managed to squeeze in a trip to the grocery, a visit to the library, a stop at the bank, a pedicure, and a haircut.
Today, I am very thankful for time to do the laundry that I have been trying very hard to ignore and some cancelled plans. I am hopeful that all of this rain is helping our garden and our new CSA grow! I am also glad to have my assistant back home again. She helped make chicken broccoli "cupcakes" last night and I have never seen anyone so excited over using the cupcake pan. Today, we are going to make some pasta salad for the Salad Luncheon at church tomorrow.
Blessings,
Cindy
Thursday, May 26, 2011
Sleep
On my last post, I was feeling a bit more optimistic. Today my lungs are full of gunk or achies as my daughter refers to it. It started with a headache on Tuesday and continued from there. I always know things are not going well when it is waking me up at night. I think sleep is one of the things that I covet most. By the time yesterday rolled around, I was laying low and watching Oprah.
Last night, I put my daughter to bed and set my alarm for midnight. I got up to put my IV on and set my alarm again for 1 a.m. When I woke up again, I found that I forgot to open the clamp on the IV. So, I set the alarm for 2 a.m. to shut the IV off again. By this time, I had woken my daughter up who realized that I was sleeping in my bed. I usually put her to bed and then sneak out. So, I had a really long night. Today, I feel like I had way too many drinks last night. I don't drink so that isn't actually the case. My blood sugar was also running high on Wed which is not ideal and makes it more difficult to fight off infection.
When I got up today, the nurse arrived at 8 a.m. for my first blood draw and dressing change. He was back again at 10 a.m. for a post IV blood draw. So far, I have accomplished dropping my daughter off at preschool and turning on the dishwasher. It isn't a very impressive list. Now, I am off to do another vest. After that, we might have time for a nap before preschool pick up. I usually have a pretty good attitude but I am not at all looking forward to PFTs tomorrow.
Today I am really thankful to the friend who agreed to watch my dog the next few days. I am also grateful to my friends who don't expect me to sugarcoat it for them. I am always thankful for my darling dog who barks way too much and waits for me to move my IV out of his way so he can sit by me on the couch.
Blessings,
Cindy
Last night, I put my daughter to bed and set my alarm for midnight. I got up to put my IV on and set my alarm again for 1 a.m. When I woke up again, I found that I forgot to open the clamp on the IV. So, I set the alarm for 2 a.m. to shut the IV off again. By this time, I had woken my daughter up who realized that I was sleeping in my bed. I usually put her to bed and then sneak out. So, I had a really long night. Today, I feel like I had way too many drinks last night. I don't drink so that isn't actually the case. My blood sugar was also running high on Wed which is not ideal and makes it more difficult to fight off infection.
When I got up today, the nurse arrived at 8 a.m. for my first blood draw and dressing change. He was back again at 10 a.m. for a post IV blood draw. So far, I have accomplished dropping my daughter off at preschool and turning on the dishwasher. It isn't a very impressive list. Now, I am off to do another vest. After that, we might have time for a nap before preschool pick up. I usually have a pretty good attitude but I am not at all looking forward to PFTs tomorrow.
Today I am really thankful to the friend who agreed to watch my dog the next few days. I am also grateful to my friends who don't expect me to sugarcoat it for them. I am always thankful for my darling dog who barks way too much and waits for me to move my IV out of his way so he can sit by me on the couch.
Blessings,
Cindy
Monday, March 7, 2011
A little encouragement
I am always amazed at how things tend to work themselves out. I believe God has a plan but I would love to know the details of the plan. I am a planner by nature and keep myself busy making lists and notes for my family. Of course, many of my well laid plans are set aside when reality sets in. I like to think that I am an optimist but I am really more of a realist. I have found that if you don't set your sights quite so high, the results aren't quite as disappointing at least as far as CF is concerned.
At gymnastics today, I learned that one of the other moms in my class used to teach tennis. She just happens to belong to the same gym and is looking for an accountability partner. I should point out that I have been sitting with her for months and just figured this all out today. God is at work.
When I got home, there was a message that one of our standing weekly appointments on Tuesday needed to be moved to another day. It made me wonder if the speech teacher had read my posts about Tuesdays. Again, God is at work.
Yesterday, my mom babysat while my husband and I went to a dinner at church. I hadn't realized it was a dinner for certain volunteers and not the whole congregation. It was such a blessing to have two hours together and a real conversation on our way home. It is amazing how it doesn't take very long to connect but it is hard to do sometimes with everything else going on.
Blessings,
Cindy
At gymnastics today, I learned that one of the other moms in my class used to teach tennis. She just happens to belong to the same gym and is looking for an accountability partner. I should point out that I have been sitting with her for months and just figured this all out today. God is at work.
When I got home, there was a message that one of our standing weekly appointments on Tuesday needed to be moved to another day. It made me wonder if the speech teacher had read my posts about Tuesdays. Again, God is at work.
Yesterday, my mom babysat while my husband and I went to a dinner at church. I hadn't realized it was a dinner for certain volunteers and not the whole congregation. It was such a blessing to have two hours together and a real conversation on our way home. It is amazing how it doesn't take very long to connect but it is hard to do sometimes with everything else going on.
Blessings,
Cindy
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