Doctor day didn't start as planned. Grandma was in charge of my darling daughter for the day but it just wasn't working out for all of us. So, the three of us headed to the U with one of us in our pajamas. You can guess which one was in her pjs.
So, the two pounds we gained last time left again. Really annoying...enough said.
The lung function went up slightly so the trend is in the right direction. We decided to stop one drug and give my kidneys a break. It also puts an end to the pre/post weekly blood draw visits from my nurse to check my drug levels.
The other drug is thought to work better over a longer time period so we went from 3 times a day over 2 hours each to 24 hours a day at the same dosage. So, you will now see me carrying a fancy black bag with an IV and pump hiding inside. While the bag is a drag, I am looking forward to getting more sleep and being able to go to bed earlier.
The next adventure is getting scheduled for a port. Most people have them in their upper chest but that doesn't work for me due to my vest. I had just resigned myself to one in my arm which would eliminate my need for going to visit radiology to get picc lines. The port can just stay in when it isn't being used. I am signed up to get a double port instead of a single so I can run multiple drugs at the same time. I feel pretty good considering I sound terrible when you read all of this.
On another note, I have a prayer request. My friend, Jen, is being treated for rejection over the next few days from her lungs. She had a transplant a couple of years ago and is facing some complications. Please pray, pray, pray.
Blessings,
Cindy
Thanks for letting us know about Jen, we will be praying!
ReplyDeleteMy guess is Mom in her Pajamas??? I hope she at least wore her robe with them! :)