My daughter and I spent last Friday at the U. She wore her pink tiara so we were easy to spot. The PFTs went up slightly and my weight is stable although a little too light. So, we made the decision to give it a go to be IV free. I had to finish up what I had left which kept it going through Saturday.
On Sunday, I had to drop off my daughter and her friend at a Princess party. When I got back home, the nurse was waiting to deaccess my port. I guess it is actually ports since I have two. I am officially free of sleeping with my IV pump and have no tubes. Yesterday, I got to take my first shower without plastic on my arm. Of course, we can always change our minds and hook it all back up. However, I will take what I can get.
So, now it is back to fun exercise and lots of eating. My daughter has big plans for me at the swimming pool. We also have a garden to plant and are working on our list of more fun. You know it has been a long run when your friends and family are just as excited to take a break.
Blessings,
Cindy
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