Sleep

I think it is funny how you don't want to go to bed early unless you can't go to be early. At least, that is the case for me right now. I am not a morning person. I don't even fake it very well. My Diet Coke typically gives me away. I am on an IV schedule of 8, 3:30, and 11 which has me getting up earlier and staying up later. My husband mixes the last IV of the day which is really nice for me. The medicine that I am on has to be mixed right before it is administered so we are running our own little pharmacy at the dining room table. I have learned some things that I can't do very well with one hand including frying chicken and drying my hair. I can type pretty well which is a saving grace for a woman with too much time on her hands.

I learned this morning that you should not watch youtube videos in the morning. I have never really watched them but a friend suggested that I check it out. I think God sent Nancy to send a message, "you have a choice." I told a friend who wanted to know how I really was recently that I was just sick and tired of being sick and tired. I know that is my reality but it just doesn't make it fun. Many years ago, someone that I didn't know very well complained that I didn't talk about cystic fibrosis enough. I am still really curious as to what exactly she wanted me to tell her. You only need to spend a day hanging out doing treatments and listening to my cough to figure out that it could be better. My picc line doctor tole me last week that I was lucky and it could be much worse. I know he meant well but lucky isn't the word that I would choose. Lucky is the part of my life that has to sign off because someone is yelling, "Mommy!"

Blessings,

Cindy