Buy flowers

Our schedule around here this week is very odd. We are getting used to the new IV schedule to start at 7:30 each day and end at 12:30 at night. My husband overheard me on the phone giving my typical answer about how things are going. He claims that I "sugarcoat" it. He told me to just answer, "actually, it really ..." I do pretty good during the day but the last IV is a bummer. I put my daughter to bed and have a nap until it is time to start again. I hope it is working but it is hard to tell. I think the Prednisone is doing something since it doesn't feel like a constant bear hug anymore.

I was very fortunate to have a little extra help yesterday. My mom picked my daughter up from school and picked up some groceries. She also helped my daughter pick out some flowers which she already thinks will fix everything. (I have trained her a little young.) They had fun on their errands and at the beauty shop while I was visiting the female doctor. I will again spare you the details. I am very thankful to have found that one of my pediatricians (from years ago) is married to a gynecologist. She understands CF and all the various issues much better without me having to explain everything. She also is connected to the rest of my team so she can read all their notes and test results.

One of the challenges that I have is to take a wealth of medical knowledge and put it to daily use. I get a lot of really great input but the experts are not usually all in one room. So, my doctor or his colleague might have one opinion. The diabetes doctor has some more input as does the dietician and the gynecologist. Now, we have a sinus doctor in the mix and the pancreas doctor is on the back burner for now. You also have my nurse and the medical monitoring office checking my blood every few days. Well, you get the idea. It is up to me to put it all together and figure it out every day.

I haven't forgotten about the menu plan for the week. I have just put it off until later today so check back later. I will tell you about this week's frugal findings that will be sent to my mortgage company as an extra payment. This week is better than most:

$328.49 (the consignment sale for my darling daughter)
$ 60.00 (a health insurance wellness award for talking to their coach)
$ 15.00 (payment for various bodily fluids given to research in my most recent study)
$403.49 TOTAL

Blessings,

Cindy