One of the easiest ways to help anyone who isn't feeling well is to simply send mail. I was reminded of this when I got a fun note and some new pictures in my mail today. I used to send A LOT of mail. I actually exchanged coupons for stamps at one point to be able to send more mail. I have a pile of mail waiting for attention but my daughter has caught on to this tradition. She likes to make a lot of mail. She sent something to one of her grandparents last week and the envelope had so much "art" on it that I am still not sure if it will make it. I was actually a little shocked that the mail man accepted it. I have also had the unfortunate experience of sending mail to someone that arrived too late. It is not good to have a get well card still looking at you for a person who simply did not get better and you never got it in the mail.
My husband supports our mail habit around here. We spend a lot more time at school now so our outgoing mail isn't as strong as it used to be. We address it and pile it up and my husband makes sure that it finds its way to the mailbox. One of his big concerns about me being sick is that he would forget to mail something. If we find ourselves in that situation, feel free to remind him to pay the health insurance bill. The rest will wait for mail day.
Tomorrow is doctor day again so it is time to think big numbers. I spent a lot of time yesterday doing an analysis of PFT scores. It is not a very exciting subject. I calculated averages and reviewed calendars to try to figure out if we were doing something different at one point or another. The higher scores appear when I was actually doing much less. A lot of people think that if I just did this, that, or the other thing, CF would cooperate. The thing is that CF is a disease and you can jump through all the hoops and it will still remind you at the most incovenient times that it is in charge much more than you care to admit. So, we continue to mix IVs, review culture results, "beat" me up, and do a lot of nebulizers and vests. (We just switched over to the 12 nebs a day month so you will find me saying no a little more often due to the schedule.) The goal is to say we did all we could do and not wonder if we could have done anything else. I have taken to saying "work the plan."
Blessings,
Cindy
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