Well, I managed to slide by without a doctor visit for quite some time. Now, fall has arrived and it is back to the regular schedule. The PFTs have slid a little which is not ideal as it is working against gravity to go back the other way. This is my month on an extra neb which might help and we are going to try an oral antibiotic.
I have managed to gain a few pounds with the help of a new med. I am not quite at the end goal but a positive in weight is always good. It is likely one of the least talked about challenges. I think it is almost physically impossible to eat the number of calories that my body requires to keep fighting germs and breathe. I have one friend who lives by the nasty shakes and another who has a feeding tube despite her best efforts to gain weight. I am not a fan of either of those options so we are sticking with the eat all the time plan.
I also managed a trip to the diabetes doctor on the same day. My daughter kept the staff entertained in the hall while I got a flu shot and had my port flushed. She was very excited to get to help get supplies out of the special closet and sit at the nurses' desk.
After an especially long visit, I was happy to head home again. Our reward was a date for Chinese food. Who can argue with that? There must be some calories in the cream cheese puffs.
Blessings,
Cindy
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