The day started off pretty well. I managed to get up early enough to do my treatment before school. That left an hour for me to room the aisles for Santa and get back to school for the preschool party. If you need a little inspiration for Christmas, a group of four year olds will show you the way. I was in charge of the crafts to make tissue paper wreaths with their cute pictures in the middle. After school, my daughter's friends were heading to lunch and we were heading to the U. They invited her to join them so she ditched me for Burger King. I am pretty sure that she had a lot more fun.
The PFT machine (or my lungs) didn't cooperate very well this week. They are down again and are staying there against our best efforts. So, we switched things up a little bit in an effort to skip the big house for the holidays. We are trying a new oral antibiotic, a little more Hypertonic Saline which you use in a nebulizer, and more Prednisone. I am not really a fan of any of that but it doesn't involve needles. We are also back to the eat all the time plan which is really frustrating because it is so much easier to lose weight than it is to gain it. I don't feel as bad as I should feel according to the numbers but my oxygen rate is lower than it should be so I get tired fast and don't have as much energy.
On a more positive note, my husband came home from France safe and sound. He missed his connection flight and got in a little later than expected. My daughter went to greet him in her new Princess slippers. We got a lot of interesting looks in the airport. She was in her glory yesterday with his undivided attention.
Blessings,
Cindy
Monday, December 19, 2011
Wednesday, December 14, 2011
Deck the Halls
I managed to find the decorations and they saved me yesterday. It ended the crying about missing Daddy and moved us right into how we "needed" to put them all on the tree. So, we have officially decorated and I must admit that it does look more festive.
I thought the stars were aligning for me when my daughter fell asleep early on the couch last night. Then, I realized that it was up to me to carry her to bed. I did think about just sleeping on the couch with her since it is big and there is plenty of room. After I managged to get her to her bed, she woke up and was not at all happy about how I thought she might want to go to bed early. I will be very grateful when her Daddy is back home again.
This morning, I spent my preschool time with my trainer. I have a few weeks off while she is out of the country for the holidays. So, I will be left to my own devices. This is a bad plan. So, feel free to call me and ask if I have worked out yet today.
Today, I am thankful for my friends and family who work to keep me very distracted and well fed. We have had a lot of fun lunch dates this week and calls for no apparent reason other than to keep us busy. I was at dance last night when one of my friends called to drop off my dinner. She claims she forgot to put onions in one pot of her chicken noodle soup so it was meant for my family. First of all, who does that? Secondly, who knows you and your schedule to track you down so they can deliver it? This week I am also thankful for my fellow volunteers who understand that my daughter and I are a package deal and don't mind having her join our meetings on short notice.
Now, on to the Christmas cards...my husband gets all of that credit as he created them for me. I am really grateful that he is safe and sound despite the crying on this side of the ocean.
Blessings,
Cindy
I thought the stars were aligning for me when my daughter fell asleep early on the couch last night. Then, I realized that it was up to me to carry her to bed. I did think about just sleeping on the couch with her since it is big and there is plenty of room. After I managged to get her to her bed, she woke up and was not at all happy about how I thought she might want to go to bed early. I will be very grateful when her Daddy is back home again.
This morning, I spent my preschool time with my trainer. I have a few weeks off while she is out of the country for the holidays. So, I will be left to my own devices. This is a bad plan. So, feel free to call me and ask if I have worked out yet today.
Today, I am thankful for my friends and family who work to keep me very distracted and well fed. We have had a lot of fun lunch dates this week and calls for no apparent reason other than to keep us busy. I was at dance last night when one of my friends called to drop off my dinner. She claims she forgot to put onions in one pot of her chicken noodle soup so it was meant for my family. First of all, who does that? Secondly, who knows you and your schedule to track you down so they can deliver it? This week I am also thankful for my fellow volunteers who understand that my daughter and I are a package deal and don't mind having her join our meetings on short notice.
Now, on to the Christmas cards...my husband gets all of that credit as he created them for me. I am really grateful that he is safe and sound despite the crying on this side of the ocean.
Blessings,
Cindy
Friday, December 9, 2011
Christmas Spirit
So, my sister tells me that it is December now. I am in total denial. I do have a tree in my living room thanks to my family who put it up in hopes that I would find the decorations. I also managed to make someone else's cards but not my own just yet. That is really just silly since I paid a mint for the darling picture in September. Well, it wasn't exactly a mint but enough for some of my friends to make fun of me and question my spending habits. I do have a few presents thanks to my sister who took me shopping at her request. Of course, they don't have any actual wrapping paper on them just yet but we have plenty of time left for that.
Last week, we had a designated holiday at our house. I declared it to be Get Your Life in Order Day. It went on for three days and things are still about the same. It isn't really that we are out of order all the time but we get one thing handled and a new thing seems to take its place.
Yesterday, I got a shiny, new oxygen machine. There are better presents in the world but if you spend a few days with a machine that beeps at you for no obvious reason, it is a relief to get a new one. I determined that I must not be on top of my game when I decided not to do something fun with my friends on the weekend. I could just use one less thing to do even if it is something fun. I also took it as a sign when my mom aborted our original plans yesterday so I could go back to the comfort of my couch. I never said anything so I must not have looked so great.
It could be said that our house is a little blue. I do like the color blue but not actually being blue. We are wrapping up a few projects which should help my color perk up a little and I have lost my sporty Sea Bands so that is promising. Of course, some rotten pleurisy has come to visit and the best word to describe that is just mean. It arrives without warning and hangs around at inconvenient times.
Tonight is my daughter's dance recital so I imagine that will help my holiday spirit get back in shape. My daughter convinced me that we really needed the new holiday dress with the fur on the bottom and the end of the sleeves since we already had the matching tights. I have to admit that it is darling but my dog thinks she is carrying around a bunny and he is not at all fond of it.
Today I am thankful for my dear friend who sent me home some yummy dinner to eat next week and a new book to keep me distracted. I am thankful that she is a good cook and a little disappointed that the dinner is already eaten. I am also really grateful to some of my friends who gathered together to help have a fun party for our friends who are heading out on their next adventure. I am very relieved to have two days free of going to school and answering questions about when they will be back. As usual, I am thankful for my wise doctor who keeps me on the straight and narrow and reminds me that it might not be the best idea to run away to France. Lastly, I am thankful for my dear husband who is just one day shy of managing to survive ten years of dealing with me in his life. He claims it was a lot less interesting and I imagine a lot less complicated before he met me.
Blessings,
Cindy
Last week, we had a designated holiday at our house. I declared it to be Get Your Life in Order Day. It went on for three days and things are still about the same. It isn't really that we are out of order all the time but we get one thing handled and a new thing seems to take its place.
Yesterday, I got a shiny, new oxygen machine. There are better presents in the world but if you spend a few days with a machine that beeps at you for no obvious reason, it is a relief to get a new one. I determined that I must not be on top of my game when I decided not to do something fun with my friends on the weekend. I could just use one less thing to do even if it is something fun. I also took it as a sign when my mom aborted our original plans yesterday so I could go back to the comfort of my couch. I never said anything so I must not have looked so great.
It could be said that our house is a little blue. I do like the color blue but not actually being blue. We are wrapping up a few projects which should help my color perk up a little and I have lost my sporty Sea Bands so that is promising. Of course, some rotten pleurisy has come to visit and the best word to describe that is just mean. It arrives without warning and hangs around at inconvenient times.
Tonight is my daughter's dance recital so I imagine that will help my holiday spirit get back in shape. My daughter convinced me that we really needed the new holiday dress with the fur on the bottom and the end of the sleeves since we already had the matching tights. I have to admit that it is darling but my dog thinks she is carrying around a bunny and he is not at all fond of it.
Today I am thankful for my dear friend who sent me home some yummy dinner to eat next week and a new book to keep me distracted. I am thankful that she is a good cook and a little disappointed that the dinner is already eaten. I am also really grateful to some of my friends who gathered together to help have a fun party for our friends who are heading out on their next adventure. I am very relieved to have two days free of going to school and answering questions about when they will be back. As usual, I am thankful for my wise doctor who keeps me on the straight and narrow and reminds me that it might not be the best idea to run away to France. Lastly, I am thankful for my dear husband who is just one day shy of managing to survive ten years of dealing with me in his life. He claims it was a lot less interesting and I imagine a lot less complicated before he met me.
Blessings,
Cindy
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